VNS appointment today, MRI scan tonight

Just got confirmation that I’ll be taking Alexandria to a neurologist appointment this afternoon, so they can turn off her VNS device in preparation for her MRI later tonight.

The MRI will be a standard 30-minute brain scan, and will allow the doctors to see what has happened since September, when her last MRI showed a spherical-shaped mass in the left hemisphere of her brain.

We are very excited about this MRI especially because:

  1. We’ve felt led by God to pray for supernatural healing over the last month, and …
  2. The recent SPECT scan results showed the doctors almost the opposite of what they were expecting to see …

Thank you for your support and encouragement as our family continues to simply walk the road that God lays out in front of us.
… and we’ll update this site when we hear more! :)

Incredible, inspiring video! (and a quick update & request re: Alexandria)

This is more than just an Easter video. I just previewed this online and was so encouraged and strengthened by the message. I hope it inspires you, too:

HAPPY EASTER!

- Andy

p.s. We are still trying to work out scheduling for Alexandria’s next MRI at Arnold-Palmer Hospital (this seems to be a very busy time right now). Please pray for coordination between our neurologists’ offices, MRI techs, and general scheduling obstacles. And please join us in asking Father to show clear direction from this MRI — either to show indisputable evidence of His healing hand at work, or to indicate that brain surgery is our next step …

p.p.s. Also, as you consider what God is doing — and as He brings Scripture to mind — will you please use the comment box below to share those specific passages with us? Thank you so much!

Yesterday’s SPECT Scan

Kristi and Alexandria, preparing for the SPECT scanFirst of all, I just want to say that God is so good! I’ve uploaded some cell-phone pics so you can see Alex (and Kristi, too) as we sat through the long test there at Arnold-Palmer Hospital for Children yesterday.

The doctors and the hospital were extra busy, so we didn’t get to see any of Alex’s doctors. And while we did not see any overwhelming physical signs of God’s healing of the mass in Alex’s brain or of her fingers, both Kristi and I felt comforted, had peace through the process, and were able to rest in the work that God is clearly doing. We both sensed in our spirits that God was doing something even while the test was being performed — and we’ll know much more next week, after Alex’s neurologist has had a chance to look at the images from this SPECT scan.

Thank you all for praying! … and we wait in expectation, continuing to pray with thanksgiving for the work that God is doing.  :)

- Andy

p.s. Here’s a few more photos of the testing:

Starting the SPECT scan

Starting the SPECT scan

Helping the SPECT scan machine get as close as possible

Helping the SPECT scan machine get as close as possible

SPECT Scan on Friday

Arnold Palmer Hospital for ChildrenIt looks like Friday (tomorrow) is going to be another interesting day at the hospital. Alexandria is scheduled for what they call a “SPECT scan“, where the doctors inject a special dye/tracer liquid into her IV just before doing a CT scan of her brain. Then, depending on where the tracer concentrates in her brain, the doctors are able to zoom in on that specific area and see 3-D imaging of what’s happening.

This specialized test will be an out-patient procedure at Arnold-Palmer Hospital for Children, and should only take a couple hours. But we are also looking forward to the great conversations that we normally have in the hospital with Alex’s neurologist and/or neurosurgeon.

Please feel free to pass any part of this message on to others who are praying for Alex. Our family is praying for God’s complete healing … but in the medical world, Friday will be ”step 2″ in about four steps of testing that need to be completed before the neurologist and neurosurgeon schedule brain surgery as a cure for Alex’s daily seizures.

Also, especially for those of you in the medical field, here’s a couple pages from Alex’s EEG monitoring last month.

Quick update, more to come …

Nurses call her "Smiley"

Nurses call her "Smiley"

Thanks so much to all of you who have been praying for Alexandria while she was in the hospital! Apart from her I-V taking eight tries!! … everything else went well and we are safe at home resting and recovering. :)

If you think of Alex throughout the day, please pray that she would do well in school … especially in the afternoon. Because her neurologist (wonderful doctor that he is) doubled her afternoon meds in order to combat her daily afternoon/evening seizures. The strategy seems to be working, but the meds cause her to be very groggy and even dizzy sometimes!

Oh, and we now have a really good idea of the next steps that we will be taking to prepare Alex (and all the rest of us) for a possible brain surgery to eliminate Alex’s daily seizures. So keep praying for wisdom with all of that, and I hope to update you with more specifics soon!

- Andy