Surgery Update

It’s so good to be in the calm AFTER the storm right now.

VNS implant

VNS implant

Alex is resting comfortably in her hospital bed after a successful surgery and is getting used to the incisions and the brand new VNS device just under the skin near her shoulder/neck.

Dr. Pattisapu

Dr. Pattisapu

Dr. Pattisapu was very encouraging with Kristi and I after the surgery and explained everything from what the problem was with the VNS implant to what options we can start thinking about for future studies and “brain mapping” to determine if brain surgery will be an option for Alex in weeks and months to come.

But the plan for now is to keep Alexandria at Arnold-Palmer Hospital for one more day to make sure that the new medicine dosages and the new VNS implant are keeping her seizures fairly stable. Then we are hoping to be released from the hospital sometime tomorrow. We can’t wait! :)

VNS Surgery Today

Alex & Kristi, just before Alex went in for surgery

Alex & Kristi, just before Alex went in for surgery

Kristi and I just sent Alex into the OR with her entourage of doctors, nurses, anesthesiologist, and VNS representative.

We’re happy that Dr. Pattisapu will be doing the surgery to repair Alex’s VNS implant and wiring that has been attached to her vagus nerve for the past 3 1/2 years. And while this is a fairly simple surgery, it does require a neurosurgeon. Because the vagus nerve is the main communication between the brain and all the vital organs.

Please pray with us that everything goes well with this surgery and the VNS device continues to help Alexandria with her seizures.

Look who visited Alex today!

Pluto provided a good distraction while Alex needed a new IV.

Pluto provided a good distraction while Alex needed a new IV.

Thoughts from a father

(posted on Tuesday, Sept. 15th, 2009)

Lots of thoughts go through a father’s mind when his daughter is in the hospital. Especially when that daughter is being admitted because of seizures and the results of an MRI that showed abnormalities in her brain.

Here's all three kids on their first day of school -- and Drew's shirt says it all! :)

Here's Drew, Kaitlyn and Alex on their first day of school -- and Drew's shirt is a bit of encouragement even for today! :)

After taking over from Kristi yesterday and sleeping in the hospital room with Alexandria last night, I was grateful for Kristi’s return today to help Alex cope with three servings of the anti-seizure medication Ativan — a nasty drug that turned my precious Alex into one of those mental psych ward patients who can’t even move their lips right to make the the words and sentences they are thinking in their head. So frustrating! And when she finally started coming out of that, she had so many mood swings and strong emotions that are totally unlike her. But it all made sense as she repeated over and over that she didn’t want to be in the prison that she was feeling — knowing full well what she wanting to think, only to not be able to express it — knowing that she wanted to watch TV, only to be discouraged by the wobbly double-vision — and wanting and trying to sit up, only to be confronted with dizziness that in her words “pushed her back down into the bed.”

Kristi and I have been taking turns caring for Alex at the hospital in between managing the schedules and well-being of Dew and Kaitlyn. And tonight we were finally able to be all together in Alex’s room … and not only us! Alex’s good friend Aubrey and her mom Vickie and our friends John and Sarah were all there to share supper together along with lots of smiles and encouragement. And amazingly, we all fit nicely into the oversized room with which we have been blessed.

So we’re through a day and a half in the hospital, and the doctors are thinking Alex will be in until Friday (another three days). They will be roughly doubling the anti-seizure medication dosage that she’s been on for about seven years. And then if her seizures are under control by Thursday, they’ll do a minor surgery to repair the VNS device that is now malfunctioning. And after all of that, the pediatric neurologists and a neurosurgeon will continue to study and consider what needs to be done about the strange shape that last night’s MRI showed to be in the left hemisphere of Alexandria’s brain.

Today we were able to provide the neuro-experts with a CD of images from an MRI that was performed four years ago … so we’re hoping that comparing the old MRI with the new MRI will give the doctors some clear insight into what is happening and what might need to be done.

So that’s what’s been happening! Thank you all for your prayers and encouragement — we are part of such a huge support group! And this makes such a huge difference to me personally. Because somehow, even in the heart of a father who has cried for my daughter a lot over the past few days — there is now a peace that is deeper than my abilities and even those of the doctors. Because I know it is all going to work out.

What’s going on?

Drew, Andy, Kaitlyn and Alex

Dear friends & family,

You’re not alone in wondering what’s happening with the Corley family. Over the past number of months, I’ve heard both encouraging words and concerned requests from so many people … and now I’m finally able to give you a better picture of what our family has been going through this past year.

SABBATICAL
Since February 1st of this year, New Tribes Mission has graciously allowed a six-month sabbatical from full-time ministry so we can focus on two issues: 1) our marriage relationship and 2) the stability of our finances. These have both been growing concerns over the past five years or more. But it was only since May of last year that everything really started unraveling. And by November we had reached a stress level where divorce and bankruptcy were, for the first time ever, considered to be viable options.

COUNSELING

After spending a weekend at home talking about issues and options, Kristi and I decided to begin going to marital counseling to hear from somebody else what our options might be. We thought there were only two options: either 1) accepting what seemed inevitable and just getting a divorce, or 2) maybe somehow trudging through incredible barriers to see our marriage restored. But our counselor offered a third option: a “biblical separation.”

So we spent December planning how to separate our activities, our parenting, our finances, our expectations … and then we officially began that journey the first week of January. And I can say that this by far has been the most confusing and painful time of my life! But it has also been the most transforming months of my life.

FINANCES
As Kristi moved into an apartment and we started sharing “custody” of the kids each week, budgets that were already operating at bare-bones levels went dramatically in the red and both Kristi and I began working part-time, freelance and even night-shift jobs to cover the extra expenses … while also remaining available as a consultant for New Tribes, to continue validating monthly financial support from churches, families and individuals around the country.

And while it’s been frustrating to try and assign meaning and purpose to all the pain and struggles, what I’ve found to be most true is that God doesn’t waste anything. Every tension, every anxiety, every tragedy, every blessing … they all are pointing to a God who became flesh and experienced the same — and so much more — to show without a doubt that intimacy with the Father, through the Son, lived out in the Spirit, is the only life worth living.

MINISTRY
So that brings us to now. After more than seven months of semi-weekly counseling, six months of separation, and five months of sabbatical “rest” … Kristi and I, the NTM Personnel Office, and our counselor are all in agreement that full-time ministry is a thing of the past. And even our future as a unified family is outside of our control right now. And that’s why we’ve decided to resign from NTM at the end of the six-month sabbatical, on July 31st.

New Tribes has graciously offered to continue processing financial gifts until the end of July, and those finances will go — as they have all along — to support our family’s logistical needs so that I can help support the technical needs of NTM worldwide. This last month and even into the future, I’d like to continue helping the NTM Communications offices — especially with all the many website projects that are showing great promise for the future of global missions.

Drew, Kristi, Kaitlyn and Alex

FAMILY
But by far the most important focus that I have right now is on the needs of my family — Kristi and our three kids. We are all healthy, and even Alexandria’s seizures are totally under control! But there is still so much going on under the surface.

As of June 22nd, I accepted a full-time, salaried position as the “Database Administrator / Data Center Coordinator” of the Catholic Foundation of Central Florida, based out of downtown Orlando. And Kristi began working nights as a professional nanny and infant care-giver. These jobs allow the kids to spend time with both of us each day through the summer (days with Kristi and evenings/nights with me) … so I am very grateful for how well that schedule is working out.

We still have no idea of how things will be in the Fall … but we are planning to keep all three kids at NTM’s co-op, K-through-8 school in Sanford. We’ve just been so amazed by the quality of Christian education and care that each of our three children have received over the past four years at this school.

WRAP-UP
If you’ve been on our mailing list for very long, you know how grateful we are for your prayers and support. And I really hope we can stay in touch in the future, too. I’ve included our main contact information below so we can do just that if you would like. Please feel free to send us a message any time!

And may God truly bless you beyond all you can think or imagine.

Andy Corley
for Kristi, Alexandria, Drew and Kaitlyn

Andy’s cell: 407-415-4744 email: corleyman@gmail.com
Kristi’s cell: 321-696-3962 email: corley.girl@gmail.com